I wish…

I wish there was no such thing as Spinal Muscular Atrophy.

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I wish sweet Ryan Hawn would be physically with his family forever.

I wish Jenn and Chris Hawn didn’t have to suffer the pain of knowing they would have have to say goodbye to their young son.

I wish treatments for SMA were a reality and a cure existed.

I wish that the numbers would change from 1 in 6000 kids affected by the disease to 1 in 100 billion.

I wish there was something we could do.

Wait, there is.  It is something small, but it just might help.

Sign this petition to help end SMA.  Experts think they are close to a viable treatment - wouldn’t it be wonderful if your signature helped to create that reality?

Tonight, I am MCing a fundraiser for Ryan’s family.  I am blessed to know this family.  I am amazed at their strength, courage and grace.  Keep them in your prayers.

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Comments

5 Responses to “I wish…”
  1. fiona says:

    what a beautiful family… and Aren’t they also blessed to know you!

  2. I signed the petition and said a prayer for that sweet family. Thanks for bringing the cause to our attention.

  3. chadwick says:

    So tragic… I will hope for a cure!

  4. Stefany says:

    I wish the same. They are on my mind everyday. Give them my best wishes.

  5. i was just sent this, jennifers blog from the day sweet ryan passed away., July 28th, 2009. http://thehawnfamilyweekly.blogspot.com/2009/07/perfect.html

    this courageous mother’s faith and love and experiences have me in a puddle of tears. I had to share this with you all. please read this… and say a prayer of thanks for all the love that is in the world…even with (and at times…even in spite of) all the pain. blessings to you danielle for cover ing this amazing family and their life inspiring story.
    Suzanne / Zen Mommy

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