There are small, wet circles covering the surface of my black desk.
I didn’t even notice them until my typing arm shifted through what felt like a spilled glass of water.
After a second of confusion, it made sense. I am writing through tears.
RYAN MICHAEL HAWN
1/27/09 – 7/28/09
Ryan Michael Hawn passed away overnight. He was this sweet little guy. I introduced you to him here. (Short video included) He was struggling through Spinal Muscual Atrophy - trying his hardest to give his parents and older sister every single minute he could. Yesterday was Ryan’s 1/2 birthday. He was only 6 months old. In that tragically-short time he gave his parents millions of amazing memories, touched thousands of people, and has encouraged hundreds to sign the petition to fight SMA.
I knew him for only a small portion of his short life.
I can’t even imagine.
I am praying, deep down in my heart, that Ryan’s parents, Jenn and Chris, and his big sister Charlotte, are surrounded by enough love to guide them through this.
If you get a chance – would you sign the petition to help end SMA ? Maybe someday, families won’t have to lose a child to this disease.
Edited to add: I just spoke with a mutual friend. Though Jenn and Chris were terribly worried Ryan’s passing would be physically painful for him, it was apparently very peaceful. He lay in bed between the two of them. He opened his eyes, smiled and went to sleep. This is how Jenn hoped he would leave them. I am grateful her one small wish was granted.
No related posts.
Related posts brought to you by Yet Another Related Posts Plugin.
